Humpty Dumpty sat on a wall.
Humpty Dumpty had a great fall.
All the king's horses and all the king's men
Couldn't put Humpty together again.
Now with openAI costing you but a feather
you can put Humpty back together!
I noticed that . Typically after the first post hits the front page and goes viral, someone else will submit a second post, which also hits the front page. It's rare, but I have seen it happen a few times over the years.
TWENTY thousand a month? Surely this is wrong. Even $2k is ridiculous, but that's just criminal. Honestly, at a certain point, you might consider learning organic chemistry just to synthesize it yourself. It's fairly easy using unwatched precursors.
This is how it is in the US for uncommon disorders, but the amount paid out of pocket is often vastly less. People are typically not writing huge checks for these drugs. It's still daunting though. The pharma company charges a lot to recoup the cost of developing and marketing the drug, which is typically paid by Medicaid. The economics wouldn't make it worthwhile develop the drug if it were too cheap.
I don't know the parent story at all, but generally drug companies are allowed to charge $$$$ for certain drugs that are affective for rare conditions, on the basis that it won't be patients who pay for them. Rather payment will ultimately come from government, possibly via an insurer. The idea being that the drugs get made and brought to market when otherwise they would not, because nobody can afford a $20K drug.
You say that like caring about the situation I find myself and my son in, not liking it, and sharing that frustrating reality with others is a bad thing.
Please don't reply to a bad comment with an even worse comment. That's the epitome of inflammatory behavior. It's not what this site is for, and destroys what it is for.
I apologize. I think if you review my comment history, it is apparent that I follow the guidelines, mostly. I flagged the comment, but I felt particularly inflamed in the moment. Personally, I feel the comments are of equal quality.
I appreciate the apology but not the equivocation. Addressing someone like that is never ok and means you surrender the right to criticize someone else. If we want others to be better we need to hold ourselves to a high standard first.
In this week’s newsletter, I want to give you some personal insight from my own experiences that I think will help explain where true personal satisfaction comes from—it comes from many places, not just one—and how you create it every day, win or lose, by the way you show up in each part of your life.
My friend loves to use em dashes, not hyphens "-" but em dashes "—". He can no longer use them since people would suspect his writing was AI generated otherwise...
The AI learned by reading writing. It's ultimately only as good as the data put in.
I also write using dashes like this. It seems to mimic speech more naturally to me - it seems intuitive. I'm also somewhat on the spectrum and I find myself (and apparently many others) more often than not trying to mimic social and language cues.
https://en.wikipedia.org/wiki/Tom_Brady
I don't want my son, who has narcolepsy, to be tired all the time.
But the medicine that helps him, Xyrem (GHB), is $20K a month.
Pay it, don't pay it, neither option truly reflects my priorities. It only reflects the hand I've been dealt by other people's priorities.
> Retail price of $21,239.97
The site is misleading in that they indicate you can just buy it from any pharmacy. But that's not how it works.
More details at: https://en.wikipedia.org/wiki/Sodium_oxybate#Cost
If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.
If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.
In this week’s newsletter, I want to give you some personal insight from my own experiences that I think will help explain where true personal satisfaction comes from—it comes from many places, not just one—and how you create it every day, win or lose, by the way you show up in each part of your life.
Note the em dashes.
I also write using dashes like this. It seems to mimic speech more naturally to me - it seems intuitive. I'm also somewhat on the spectrum and I find myself (and apparently many others) more often than not trying to mimic social and language cues.